Resources

Our research includes the provision of resources for families, doctors and therapists.

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Useful Links

• ARACY - Australian Research Alliance for Children and Youth

• Children with disability Australia

• Research Autism

Worldwide Rett Syndrome Associations

• Austrian Rett Syndrome Association

• Belgium - Belgische Rett Syndroom Vereniging

• Brazil - Abre-Te/Sp Associção Brasilera de síndrome de Rett de São Paulo Centro de Referência

• Canada - Ontario Rett Syndrome Association Canada

• Czech Republic - Rett Community Czech Republic

• Denmark - Landsforeningen Rett Syndrome Denmark

• Finland - Rett syndrome families Finland

• France - Association Francaise du Syndrome Rett

• Germany - Elternhilfe für Kinder mit Rett-Syndrom

• India - Indian Rett syndrome foundation

• Ireland - Rett Syndrome Association of Ireland

• Israel - Rett syndrome Association of Israel

• Italy - Associazione Italiana Rett

• Japan - Rett Syndrome Association Japan

• The Netherlands- Rett Syndroom Netwerk

• Norway - Norsk Forening for Rett Syndrom

• New Zealand - Rett Syndrome Association New Zealand

• Poland - Ogólnopolskie Stow. Pomocy Osobom zespolem Retta

• Russia - Rett Syndrome Association Russia

• Spain - Associació Catalana de la Síndrome de Rett

• Spain - Asociación Valenciana del Síndrome de Rett

• Sweden - Rett Syndrom i Sverige

• United Kingdom - Rett Syndrome Association UK

• U.S. - International Rett Syndrome Association

• U.S.- Rett Syndrome Association of Illinois

• U.S. - New Jersey Rett Syndrome Association