Australian Collaborators
Australian Families and Carers
The Kids Research Institute Australia, Perth
Helen Leonard, Carol Bower, Nick de Klerk, Alison Anderson, Ami Bebbington, Jenny Downs, Peter Jacoby, Kingsley Wong, Katherine Bathgate, Janice Lim, Stephanie Fehr, Amanda Jefferson, Anna Urbanowicz, Joanne Lee
Curtin University, Perth
Sue Fyfe, Amanda Jefferson, Joanne Lee
The Australian Paediatric Surveillance Unit, Sydney
Elizabeth Elliot, Yvonne Zurynski
The Children's Hospital at Westmead, Sydney
John Christodoulou, Carolyn Ellaway, Meredith Wilson, Bruce Bennetts, Elizabeth Elliott
Mater Children's Hospital, Brisbane
Honey Heussler, Geoffrey Askin, Maree Izatt, Ivan McGowan,
The Royal Childen's Hospital, Melbourne
Gordon Baike, Ian Torode
Sydney Children's Hospital
Helen Woodhead
Princess Margaret Hospital for Children, Perth
Lakshmi Nagarajan, Peter Rowe, Peter Walsh, Madhur Ravikumara, Aris Siafarikas, Simon Williams
University of Chicago
Michael Msall
Women's & Children's Hospital, Adelaide
Elizabeth Thompson
Royal Perth Hospital
Mark Davis
Kennedy Krieger Institute Johns Hopkins Medical Institutions, Baltimore, MD, USA
Walter Kaufmann
The University of Alabama
Alan Percy
International partnerships
The development of research partnerships is a priority for InterRett. In this way, centres or clinicians with access to large numbers of patients with Rett syndrome can collaborate and make joint use of data.We are keen to facilitate partnerships in terms of collection, storage and sharing of data. Memoranda of understanding can be established flexibly catering to the differing needs of various centres.
Centres currently developing partnerships include:
- Israel Rett Syndrome Center, Tel Aviv
- Dr Bao, Peking University, China
- Dr Nadia Bahi-Buisson, Hospital Necker Enfants Malades, Paris
- Dr Mercedes Pineda, Hospital Sant Joan de Deu, Spain
- Dr Patrick MacLeod, Victoria General Hospital, Canada
- Dr Violeta Medina-Crespo, Mexico