Our AussieRett team recently visited Melbourne, Australia for the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 15th World Congress.
The team presented information on:
- Data linkage in Western Australia
- Quality of life in children with intellectual disabilities
- The need for international rare disease registers to study individual rare disorders associated with intellectual disabilities
- Sleep problems in Rett syndrome and the CDKL5 disorder
Pictured below is Helen's panel discussion regarding the "Genetic architecture of neurodevelopment disabilities".
