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Welcome to ActiveRett.

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ActiveRett is an online resource for families,
carers, therapists, and teachers, for them

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to support people with Rett syndrome to live more physically active lives.

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My name is Dr Jenny Downs,

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and I'm head of Child Disability Research at Telethon Kids Institute.

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And my name is Jane Eikelboom, and this is my 29-year old daughter Leana, who has Rett syndrome.  

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I am part of a team of parents who co-designed the ActiveRett webpage with the research team at Telethon Kids Institute.

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The webpage has information about how you can plan physical activity routines for your child with Rett syndrome.

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There is lots of information and ideas.

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Select what will suit your child and your family, or, you may think of some different ideas.

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Every child, and every family is different.

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We suggest that you discuss the information in ActiveRett with your family, friends, carers, and healthcare professionals,

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and find ways together for your child to be more active.

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Being a team, and working together shares the load.

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As a mother, I know that activities need to be meaningful, and enjoyable, for my daughter and for our family.

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I know that the activities need to include her in other things that are going on in our home, or in the community.

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I also know that physical activity ideas come to life when I encourage and praise her, and when we have fun.

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I hope you enjoy working with the information on the ActiveRett webpage.

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Thank you very much for visiting ActiveRett.